April 20, 2014

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Little Lilly needs the gift of 'life' PDF Print E-mail

 

By NANCY WHITAKER

Progress Staff Writer

PAULDING – Lilliana Jenean Rose Dearing, 4-year-old daughter of Amanda Briner and Todd Dearing II of Paulding, needs your prayers and support. The little preschooler was diagnosed with Diffuse Intrinsic Pontine Glioma (an inoperable brain tumor) and may have only weeks to live.

Lilly was born May 21, 2006 in Paulding Hospital. She is a beautiful little girl who loves stuffed animals and the color pink. Her mom said, “We noticed at times she seemed a little clumsy and drooled some, but a doctor assured us there was nothing wrong.”

She started preschool in August with Becca Kohart as her teacher. In early October she came down with flu-like symptoms. Those flu-like symptoms never seemed to get any better. By late October, Lilly was falling, had tremors, and the drooling became excessive. Her parents took her to various clinics and doctors who all agreed that Lilly appeared to be normal.

She was taken to an Urgent Care Clinic, where she was given medicine, but nothing was working. Finally, Amanda got Lilly in to see a pediatrician who referred them to a neurologist at St. Vincent’s Children’s Hospital in Toledo.

The date was Jan. 17. The doctors at St. Vincent’s, after examining Lilly, asked if they could admit her. Her parents gladly said, “Yes, we need to get to the bottom of this and see what is wrong.”

The next day an MRI was done on the little girl and meanwhile she was given some treatment.

The surgeon came in and told Amanda and Todd that Lilly had an inoperable tumor. They were to meet with him the next day and look at the results of Lilly’s MRI.

It was Jan. 23 when Amanda and Todd received the most devastating news of their life. Amanda said, “There was a picture on the computer screen in the surgeon’s office and I looked at it and thought, ‘Wow. That don’t look good.’

“Here it was Lilly’s MRI and the surgeon proceeded to show us the size and diagnosis of her tumor. The tumor was the size of a fist and was inoperable.

“Todd and I cried and cried. Then I felt angry that this had to happen to my little girl. I still feel angry. I want her to live. She is my life.”

Their options were few. Todd and Amanda weighed them because whatever path they would take still meant their daughter was more than likely going to die.

Little Lilly just wanted to go home. She is resting at home now, but she has lost most of her motor skills. She cannot walk and her mother is with her all of the time. Amanda has contacted physicians at the Burzynski Clinic in Houston, Texas. The clinic has had a very high success rate in treating these type of tumors. However, the cost for the treatment is at least $18,000.

Mandy said she has a telephone number to call to see about getting plane fare and that the Burzynski Clinic has an opening to treat Lilly the first week in February.

Fund-raisers and support is needed to help Lilly keep her gift of life. (See related story.)

A fund has been set up for Lilly Dearing at First Federal Bank or a Web site is also available at http://lillyneedsyourhelp.co.cc

 

Benefits being held for Lilly

By NANCY WHITAKER

Progress Staff Writer

PAULDING – A benefit to raise money for little 4-year-old cancer victim Lilliana Dearing will be held from 6-11:30 p.m. Friday, Feb. 4 at the Paulding Eagles.

The benefit will feature food, an auction, 50/50 drawing, a D.J. and much more.

Donations are currently being taken for the benefit. Donations to the benefit can be made by calling Jen at 419-506-1370; Mandy at 419-796-1499 or Angie at 419-399-5494.

Everyone is welcome to attend. Let’s all help Lilliana get the medical treatment she so desperately needs.

Other fund-raisers being planned include:

Los Gallitos Restaurant will be donating 50 percent of all sales to the family from 3 p.m. until closing on Feb. 7. The employees have all donated their time. Los Gallitos also will be selling raffle tickets for a custom  Ohio State rock.

Erika Pease Photography and Stephanie Schweller of Every Day Photography are teaming up and offering “Lilly Needs Your Help” photography sessions for $100. They are offering 30-minute sessions with 12 edited images on a CD. All proceeds are going to Lilliana Dearing.

The Paulding community is pulling together to help save Lilly’s life.

 

 

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